'Superb... up-ends received wisdom about disability… Humbling, dark, bright, defiant, generous… revolutionary' David Mitchell, author of Cloud AtlasA profoundly beautiful memoir about disability, difference, and living as a vulnerable bodyJan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clin...

* A New York Times Editors' Choice * Publishers Weekly Best Nonfiction Books of 2021 *I am not talking about surviving. I am not talking about becoming human, but about how I came to realize that I had always already been human. I am writing about all that I wanted to have, and how I got it. I am writing about what it cost, and how I was able to afford it.Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shi...

Growing up disabled can be an isolating experience. As much as you might be surrounded by loving and well-meaning friends and family, chances are no one close to you is going through this alongside you . . . until now!From navigating sports at school, to facing the confusion of getting given free stuff all the time, to juggling hospital trips alongside your social life, this anthology of firsthand experiences of childhood disability will be a welcome companion for disabled children...

'Superb... up-ends received wisdom about disability... Humbling, dark, bright, defiant, generous... revolutionary' David Mitchell, author of Cloud Atlas A profoundly beautiful memoir about disability, difference, and living as a vulnerable body Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body...

Growing up disabled can be an isolating experience. As much as you might be surrounded by loving and well-meaning friends and family, chances are no one close to you is going through this alongside you . . . until now!From navigating sports at school, to facing the confusion of getting given free stuff all the time, to juggling hospital trips alongside your social life, this anthology of firsthand experiences of childhood disability will be a welcome companion for disabled children...