Debating Human Genetics is based on ethnographic research focusing primarily on the UK publics who are debating and engaging with human genetics, and related bio and techno-science. Drawing on recent interviews and data, collated in a range of public settings, it provides a unique overview of multiple publics as they ‘frame’ the stake of the debates in this emerging, complex and controversial arena.The book outlines key sites and applications of human genetics that have sp...

The history of contemporary genetic counseling, including its medical, personal, and ethical dimensions.Winner of the CHOICE Outstanding Academic Title of the Choice ACRLFor sixty years genetic counselors have served as the messengers of important information about the risks, realities, and perceptions of genetic conditions. More than 2,500 certified genetic counselors in the United States work in clinics, community and teaching hospitals, public health dep...

A leading geneticist explores what promises to be one of the most transformative advances in health and medicine in historyAlmost every week, another exciting headline appears about new advances in the field of genetics. Genetic testing is experiencing the kind of exponential growth once seen with the birth of the Internet, while the plummeting cost of DNA sequencing makes it increasingly accessible for individuals and families.Steven Lipkin and Jon Luoma p...

Human gene transfer is widely regarded as one of the most promising technologies for the treatment of a variety of disorders, but it presents practitioners with a variety of difficult ethical questions. Gene Transfer and the Ethics of First-in-Human Research examines the ethical and policy dimensions of testing interventions in human beings for the first time. The book discusses the difficult ethical challenges that arise from attempting to translate laboratory discoveries into clinical ap...

Almost daily we hear news stories, advertisements, and scientific reports that promise genetic medicine will make us live longer, enable doctors to identify and treat diseases before they start, and individualize our medical care. But surprisingly, a century ago eugenicists were making the same promises. The Science of Human Perfection traces the history of the promises of medical genetics and of the medical dimension of eugenics. The book also considers social and ethical issues ...

What do you think about cloning, stem cell research, brain enhancement, or doing experiments on newly dead patients? Read Smart Mice, Not so Smart People and you'll know what Art Caplan thinks. But this assortment of pithy, provocative opinions on all things bioethical does more than simply give you a piece of the author's mind-it also invites and even dares you to make up your own mind. In his typical style, Caplan-one of the most sought-after bioethicists of our time-provokes di...

Technicians of Human Dignity traces the extraordinary rise of human dignity as a defining concern of religious, political, and bioethical institutions over the last half century and offers original insight into how human dignity has become threatened by its own success. The global expansion of dignitarian politics has left dignity without a stable set of meanings or referents, unsettling contemporary economies of life and power.Engaging anthropology, theology, and bioethics, Bennet...

The manner in which genetic research associated with addiction is conducted, interpreted and translated into clinical practice and policy initiatives raises important social, ethical and legal issues. Genetic Research on Addiction fulfils two key aims; the first is to identify the ethical issues and requirements arising when carrying out genetically-based addiction research, and the second is to explore the ethical, legal and public policy implications of interpreting, translating and appl...

A richly detailed history that "uncovers the challenges and limitations of our increasing reliance on genetic data in medical decision making" (Shobita Parthasarathy, author of Building Genetic Medicine).Medical geneticists began mapping the chromosomal infrastructure piece by piece in the 1970s by focusing on what was known about individual genetic disorders. Five decades later, their infrastructure had become an edifice for prevention, allowing expectant ...

Changes in health care have dramatically altered the experience of dying in America.At the turn of the twentieth century, medicine’s imperative to cure disease increasingly took priority over the demand to relieve pain and suffering at the end of life. Filled with heartbreaking stories, The Inevitable Hour demonstrates that professional attention and resources gradually were diverted from dying patients.Emily K. Abel challenges three myths about health care...

This book is a comprehensive, empirically-grounded exploration of the relationship between bioethics, culture, and the perspective of being affected. It provides a new outlook on how complex “bioethical” issues become questions of everyday life. The authors focus on two contexts, genetic testing and end-of-life care, to locate and demonstrate emerging themes of responsibility, such as self-responsibility, responsibility for kin, and the responsibility of society. Within these themes, the d...

"A compelling collection of essays that address the experiences of many who have genetically based illnesses." — Library JournalThe contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is avail...