Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a realityMedicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated...

States of Solidarity: How to Build a Society makes the urgent case that solidarity is not a relic of the past but a foundational pillar for building just, democratic, and sustainable futures. While contemporary societies have invested heavily in debates about justice and institutional reform, they often overlook the social glue that binds people together in everyday life: solidarity. Without it, democratic legitimacy weakens, trust frays, and the collective capacity to act on shar...

In times of global economic and political crises, the notion of solidarity is gaining new currency. This book argues that a solidarity-based perspective can help us to find new ways to address pressing problems. Exemplified by three case studies from the field of biomedicine: databases for health and disease research, personalised healthcare, and organ donation, it explores how solidarity can make a difference in how we frame problems, and in the policy solutions that we can offer.

As DNA forensic profiling and databasing become established as key technologies in the toolbox of the forensic sciences, their expanding use raises important issues that promise to touch everyone's lives. In an authoritative global investigation of a diverse range of countries, including those at the forefront of these technologies' development and use, this book identifies and provides critical reflection upon the many issues of privacy; distributive justice; DNA information system owners...

The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an out...

Interdisciplinarity has become a buzzword in academia, as research universities funnel their financial resources toward collaborations between faculty in different disciplines. In theory, interdisciplinary collaboration breaks down artificial divisions between different departments, allowing more innovative and sophisticated research to flourish. But does it actually work this way in practice?Investigating Interdisciplinary Collaboration puts the common beliefs ab...

COVID-19 has exposed defects in our current political–economic order: extreme wealth inequality, an ideology-driven government, a greedy corporate sector, a precarious labour force and a looming climate catastrophe.This accessible book offers a unique blend of moral imagination and social–political analysis to overcome these defects. It focuses on two characteristics of contemporary societies – hegemony and complexity – that have inhibited our ability to imagine, and take seriously...

As public and private sector organizations work more frequently in partnership, managing uncertainties, problems and controversies becomes increasingly difficult. Despite sophisticated technology and knowledge, the strategic networks and games required to solve uncertainties becomes more complex and more important than ever before. This unique text examines such developments in the area of network strategy.Differentiating itself from other policy network approaches which mainly hav...

Calls for closer connections among disciplines can be heard throughout the world of scholarly research, from major universities to the National Institutes of Health. In Defense of Disciplines presents a fresh and daring analysis of the argument surrounding interdisciplinarity. Challenging the belief that blurring the boundaries between traditional academic fields promotes more integrated research and effective teaching, Jerry Jacobs contends that the promise of interdisciplinarity...

For decades now, researchers in the social sciences and humanities have been expressing a deep dissatisfaction with the process of research-ethics review in academia. Continuing the ongoing critique of ethics review begun in Will C. van den Hoonaard’s Walking the Tightrope and The Seduction of Ethics, The Ethics Rupture offers both an account of the system’s failings and a series of proposals on how to ensure that social research is ethical, rather than merely co...

This fresh, confident second edition expands its focus on the theoretical and practical aspects of doing qualitative research in light of new ethical dilemmas facing researchers today.In a climate of significant social and technological change, researchers must respond to increased ethical regulation and scrutiny of research. New sources, types of data and modes of accessing participants are all challenging and reconfiguring traditional ideas of the research relationship.Th...

The fourth edition of an authoritative overview, with all new chapters that capture the state of the art in a rapidly growing field.Science and Technology Studies (STS) is a flourishing interdisciplinary field that examines the transformative power of science and technology to arrange and rearrange contemporary societies. The Handbook of Science and Technology Studies provides a comprehensive and authoritative overview of the field, reviewing current resea...