For the past six years, Whitney Dafoe has been confined to a bedroom in the back of his parents' home, unable to walk, eat or speak. His diagnosis? The mysterious disease myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) which affects 20 million people around the world who largely suffer in silence because the condition is little known and much misunderstood.Waiting for Superman follows Whitney's father, groundbreaking geneticist Ron Davis, as he uncovers new ...

Agency and Bodily Autonomy in Systems of Care examines the ways in which humans and their bodies become enmeshed in various systems of care. Seven case studies demonstrate the ways in which people lose, negotiate, establish, or impose bodily autonomy in diverse contexts. Diverse methods and perspectives from cultural and medical anthropology, bioarchaeology and public health establish the need for advocacy and policy change to improve health outcomes by re-envisioning systems of c...